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Journey of Resilience

2017-06-24_16.41.28

Posted on August 14, 2017

By Sarah
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2017-06-24_16.41.28

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    • "Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky." Rabindranath Tagore
    • Do you know who made the phrase, “beauty is in the eye of the beholder,” famous? (see the answer at the end***) - - - - - Beauty is in the eye of the beholder... The idea of beauty being assigned by the onlooker has interesting implications in the realm of chronic illness and special needs. .⠀⠀⠀⠀⠀⠀⠀⠀⠀ When chronically ill, one is unable to do the simple things the rest of us take for granted - and it's not by choice. Intertwined with clashing moments of hope, pain, and loss, there are very hard things that can be viewed as beautiful. A compassionate comment. An injection to relieve pain. A kind nurse closing the blinds to blanket the room in darkness. A moment of strength to prepare a snack. .⠀⠀⠀⠀⠀⠀⠀⠀⠀ And there are the toils of a special needs parent - when we see the beauty in our child that the world overlooks. This child would never be in the running for PEOPLE magazine's "most beautiful" list. But there is more beauty in their soul than the outward appearance of all the "most beautifuls" put together. Beauty can be found in many places... The peacefulness of quiet for our sensitive listener. The elation of hearing a precious vocalization. The excitement of seeing them taste a new flavor. The deep focus required to touch an object with sweet, clumsy hands. .⠀⠀⠀⠀⠀⠀⠀⠀⠀ Beauty is right in front of us. Do you see it? . .⠀⠀⠀⠀⠀⠀⠀⠀⠀ - - - - - ***Born in 1855, the Irish author Margaret Wolfe Hungerford, is one of many female authors that wrote under a pen name in order to hide the fact that she was a woman. She is said to have made the phrase, "beauty is in the eye of the beholder" famous. Hungerford's pen name was "The Duchess."
    • A loyal sister is worth a thousand friends. -unknown - So thankful for my sisters and sisterly friends! Happy sisters' day! -
    • I'm 32! My parents-in-law gifted me with a beautiful cake from @muddybeesbakery - smells sooo good! Can't wait to eat it. 😊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Went out with my sweetie for sushi 🍣 last night, and grilling out with cake for dessert tonight - I got two days of celebration this year. 😎 -Sarah ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀
    • we long for beauty in life ⠀⠀⠀⠀⠀⠀⠀⠀⠀ but life doesn't always give us beauty ⠀⠀⠀⠀⠀⠀⠀⠀⠀ messy sheets, chocolate on the pillowcase, unmade beds, stacks of dishes competing with piles of laundry ⠀⠀⠀⠀⠀⠀⠀⠀⠀ and then the doorbell rings "I'm shutting your water off to work on the water main" ⠀⠀⠀⠀⠀⠀⠀⠀⠀ good thing I didn't have all the dishes and all the laundry to do 🤔 before my now non-existent shower /sarcasm ⠀⠀⠀⠀⠀⠀⠀⠀⠀ is beauty only Instagram-worthy? or can it be found outside the tangible things... ⠀⠀⠀⠀⠀⠀⠀⠀⠀ in my attitude as I'm stuck with sweeping and sorting. in stacking the soiled dishes my little loves have eaten from. in sorting the laundry that was so exuberantly dirtied. in tidying the sheets my little peeps rested so peacefully. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ to paraphrase a familiar proverb, "it's better to live among helter-skelter medical supplies with a thankful wife, than in a clean house containing a mommy with a rotten demeanor" 😉 or something like that ⠀⠀⠀⠀⠀⠀⠀⠀⠀ choosing joy . . .
    • We always pass these beautiful boulders on our trips to the children's hospital in California, getting a quick glimpse as we fly by on the interstate - until now. - They are shockingly vibrant compared to the surrounding landscape! 🌈 So fun to see after hours and hours of brown desert. - What started as a temporary art display, has become an attraction with a timeline that continues to be extended. Last I heard, the display dates were confirmed for several more months in 2018, and I wanted to get the kids up close to the "piles of rocks" before they risked being taken away. - Just a short walk from the car had us guzzling water 💦 and seeking the shade of the towering boulders. - Toby was concerned the piles might topple, 🤣 but we visited and departed unscathed.
    • The older kids have been hinting that our excursions have all been focused on the baby's special needs lately (doctors, therapies, etc), and they're right. It's been too hot ☀️ for parks, so I told them we could go get some cookies after the post office this morning. Not very healthy, but a special treat. - I heard a lot about @crumblcookies 🍪 from the nurses in the children's hospital up north, but didn't realize until last night that they have a store in St George. They deliver the cookies warm, or you can stop in and purchase at the counter. - The cookies are massive, and the special flavors are imaginative - we mostly opted for classics: chocolate chip, s'mores, oatmeal chocolate chip, and frosted sugar cookie. - The s'mores was our favorite, but the chocolate chip and sugar cookie were tied for second. They're pricey at $3/ea, or $10 for 4, so definitely a treat for us. Next time we go, we'll have to make sure it's a s'mores week. 😂 -Sarah
    • #TBT - snapped a pic when leaving the park after a visit to Snow Canyon. Love the blue skies and red rocks!

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