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How I Found My Son’s Neurosurgeon on PubMed

If you or your child has a VP shunt, CLICK HERE to access our FREE printable "Is It a Shunt Malfunction?" It's a simple tool to help clarify and track...

3 Things I Wish I Knew When Hydrocephalus Took Us By Surprise

Not the Plan Sitting in that cold, sterile NICU room, I was trying to take it all in. The wall behind the incubator was painted a sage green. It was a calm color, oblivious...

My Toddler Was Locked Inside by Severe Anoxic Brain Damage

It's been a year since one of the worst events of my life. One year ago, I was very gingerly carrying the shell of my 2-year-old boy out of the children's...

5 Ways to Help Your Friend Whose Baby is in the NICU

A stay in the NICU is a very hard phase to live through - for both the family and the baby. Many NICUs are not as family friendly as they like...

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