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How I Found My Son’s Neurosurgeon on PubMed

If you or your child has a VP shunt, CLICK HERE to access our FREE printable "Is It a Shunt Malfunction?" It's a simple tool to help...

Incontinence and the Neurogenic Bowel

This post is sponsored by Aeroflow Urology, but all opinions are my own. Today's topic may be a little graphic. It's one of those things...

3 Things I Wish I Knew When Hydrocephalus Took Us By Surprise

Not the Plan Sitting in that cold, sterile NICU room, I was trying to take it all in. The wall behind the incubator...

My Toddler Was Locked Inside by Severe Anoxic Brain Damage

It's been a year since one of the worst events of my life. One year ago, I was very gingerly carrying the shell of my 2-year-old boy out of the children's...

5 Ways to Help Your Friend Whose Baby is in the NICU

A stay in the NICU is a very hard phase to live through - for both the family and the baby. Many NICUs are not as family friendly as they like...

I’m Not Amazing

"I couldn't do what you do." Their words hang in the air. They don't know what else to say. I used to utter the same phrase. I would put a special needs mom on...

What’s Wrong with Him?

That inquisitive look. I run into it nearly everywhere I go, often in the form of a lingering glance or questioning eyes. My baby needs oxygen, and is connected to an oxygen...

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